Strategic Data Management Roadmap

NACC continues to expand our resources, as well as the functionality of the Data Platform and ADRC Portals to support efficient data management, integration, and access across the ADRC Program. The following details ongoing and upcoming enhancements that are aligned with our UDSv4 implementation and multimodal data integration priorities.

June 2026

Spanish C2T Forms & Worksheets Now Available

The Latino Task Force and NACC have released the Spanish version of the UDSv4 C2T to enable ADRCs to administer UDSv4 via telephone. (Note: The Spanish version of the Verbal Naming Test is not currently available – NACC will release it after it’s approved by the Latino Task Force.)

Version 0.6.0 of the Error Report (Issue Manager)

NACC has released version 0.6.0 of the Error Report (Issue Manager), introducing several usability improvements to streamline the alert review process. Updates include customizable table settings, full error messages, one-click selection of approved visits, saved user settings, simplified alerts, and improved submission feedback to confirm successful submissions.

UDSv4 Down Syndrome Data Accepted

NACC now accepts Down Syndrome data associated with UDSv4 in the ADRC Portal, expanding data collection capabilities and supporting broader research efforts.

ADRC Program Reports Update

Our ADRC Program Reports (beta) are now enhanced with additional charts to provide deeper insights. 

May 2026

ADRC Portal Updates

The ADRC Program Reports now include a “Monthly Snapshot” filter that allows users to select data for a specific month. 

First CLARiTI Data Freeze (June 1, 2026)

This will support the first public CLARiTI data release through the NACC Data Platform outside the ADRC network, marking a major milestone for the study and consortium. Ensuring the freeze is as complete and accurate as possible will maximize its value to the broader research community.

April 2026

New CLARiTI Dashboards

Two new dashboards are now available in the ADRC Portal to support study operations and data management workflows

Spanish UDSv4 Follow-Up Visit Packets (FVP)

These packets expand access to standardized follow-up assessments for Spanish-speaking participants across ADRCs.

New “Available Modalities” in the ADRC Portal 

This feature allows users to easily view and download the data modalities available for participants at their center. To explore, in the ADRC Portal navigate to: Manage Participants→Available Data Modalities 

March 2026

ADRC Portal Expands with NCRAD Biomarker Data

NCRAD biomarker analysis data are now available to ADRCs through the ADRC Portal, including return-based control data and a new data dictionary. This update replaces the previous email-based request process, making it faster and easier for ADRCs to access NCRAD data.

ADRC Community Library

Share tools and resources with your colleagues by posting a topic in the ADRC Program Community Forum’s new ADRC Community Library. (Requires a Forum account to access.)

Updated Best Practices

ADRC best practice documents covering topics such as biomarker collection, remuneration, digital voice capture, and EAC guidelines are now available on the Best Practices.

Q3: July 1 – September 30

• NCRAD data returns included in the QAF
• Historical NCRAD returns available in the ADRC Portal
• D1C form available for collecting revised AA Criteria