The shortened version of the LBD Module was implemented in 2020 and contains data collected on a subset of UDS participants. The Module is aimed at evaluating those suffering from or at risk for dementia with Lewy bodies.


Essential Documents

 

Initial Visit (IVP)

Follow-up Visit (FVP)

Forms Packet
The full packet, containing all data collection forms. Alternatively, individual forms can be downloaded below.

IVP
FVP

Coding Guidebook
The guidebooks provide detailed, annotated explanations of each form on an item-level basis, with instructions, operational definitions, and references.

IVP
FVP

Data Element Dictionary
In a compact format, the DEDs list all the variables and provide a detailed description, including data type, length of field, allowable codes, and information on skip patterns and blanks.

IVP
FVP

Data Template
Templates are designed to help ADRC Data Cores develop software for submitting UDS data to NACC via ASCII batch file submission.

IVP
FVP
 

Individual forms

 

Initial Visit (IVP)

Follow-up Visit (FVP)

B1L: Clinical Symptoms and Exam

IVP
FVP

B2L: UPDRS Part II — Activities of Daily Living

IVP
FVP

B3L: UPDRS Part III — Motor Examination

IVP
FVP

B4L: Neuropsychiatric Inventory (NPI)

IVP
FVP

B5L: Mayo Fluctuations Scale

IVP
FVP

B6L: Mayo Sleep Questionnaire — Participant

IVP
FVP

B7L: Mayo Sleep Questionnaire — Co-participant

IVP
FVP

B9L: SCOPA Sleep — Co-participant

IVP
FVP

C1L: Neuropsychological Battery Scores

IVP
FVP

D1L: Clinical DLB and PD Features

IVP
FVP

E1L: Genetics

IVP
FVP

E2L: Neuroimaging Available and FIndings

IVP
FVP

E3L: Other Labs and Findings

IVP
FVP