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Data Collection Training
Administering the UDS Administering the UDS OverviewResources and Training Other UDS Training MaterialsUDSv4 Administration FAQGeneral and form specific guidanceKnight ADRC [...]
Collect and Submit ADRC Data
Clinicians at ADRCs collect clinical data using NACC forms and submit it to NACC. This data contributes to NACC's Uniform [...]
Neuropathology Data
Autopsy data: The Neuropathology Data Set and Brief Data Set Autopsy data: The Neuropathology Data Set and Brief Data Set [...]
Imaging Data
Standardized Imaging Standardized Imaging Standardized Centralized Alzheimer's & Related Dementias Neuroimaging (SCAN) Standardized Centralized Alzheimer's & Related Dementias Neuroimaging (SCAN) The SCAN [...]
Longitudinal Neurocognitive and Clinical Phenotype Data
Since 2005, Alzheimer s Disease Research Centers (ADRCs) have been contributing data to the Uniform Data Set (UDS), using a prospective, [...]
UDSv4 Information
About NACC's Uniform Data Set About NACC's Uniform Data Set The NACC Uniform Data Set (UDS) is one of the [...]
Data File FAQ
Frequently Asked Questions about Data Files and the UDSMy data download link has expired can you send me a new [...]
UDSv3 - Forms and Documentation
v4 v3 v2 v1.2 The Uniform Data Set contains longitudinal data, collected since 2005 during standardized annual evaluations conducted at the [...]
COVID-19
NACC COVID-19 Supplement NACC COVID-19 Supplement COVID has had an enormous impact in the United States with higher death rates [...]
Terms/Privacy
Terms & Conditions Terms & Conditions ADRC Program Community Forum Terms of ServiceEffective Date: May 22, 2024OverviewThe ADRC Program Community Forum ("Forum"), hosted [...]
UDSv4 Translations FAQ
Spanish UDSv4 FAQs Spanish UDSv4 FAQs About the Adapation About the Adapation Who Created the Spanish Adaptation? We want to [...]
2025 New Investigator Award Winners
earn about investigators whose innovative work across the ADRC Program is advancing Alzheimer’s disease research and highlighting the impact of collaboration, strong study design, and emerging leaders shaping the future of the field
Request NACC Forms
An essential part of the mission of the National Alzheimer s Coordinating Center (NACC) is setting the standard for Alzheimer [...]
Partners / Collaborations
Your Gateway to Comprehensive Alzheimer's Research Data Your Gateway to Comprehensive Alzheimer's Research Data NACC partners with the National Centralized [...]
COVID-19 v1
v2 v1 ADRCs will need to provide information about local vaccine availability to participants that are interested. The CDC has [...]
NACCID
What is a NACCID? What is a NACCID? NACCIDs are the universal unique identifiers for ADRC participants. These IDs enable [...]
COVID-19 v2
v2 v1 COVID Impact Survey F2/F3 v2 aims to collect valuable information about COVID vaccinations, infections, and hospitalizations of [...]
Neuropathology (NP) v10
v11 v10 v9 v8 v1 The Neuropathology Data Set is collected using a standardized neuropathological evaluation and contains autopsy data [...]
Lewy Body Dementia Module v3
v3.1 v3 The LBD Module was implemented in 2015 and contains data collected on a subset of UDS participants. The Module [...]
FTLD Module v2
v3 v2 The FTLD Module was implemented in 2012 and contains data collected on a subset of UDS participants. The Module [...]