About NACC
The National Alzheimer’s Coordinating Center (NACC) was established in 1999 by the National Institute on Aging (NIA) and serves as the centralized data repository, collaboration, and communication hub for the NIA’s Alzheimer’s Disease Research Centers (ADRC) Program.
Over the past 24+ years, NACC has partnered with over 42 current and former ADRCs across the U.S. to build one of the world’s largest and most comprehensive datasets on Alzheimer’s disease and related dementias (AD/ADRD). The NACC Data Platform houses standardized multimodal data on more than 50,000 participants, ranging from cognitively normal individuals to those with mild cognitive impairment or dementia symptoms, with over 17,000 participants actively followed.
Read about NACC's 2024 progress in our 2024 Highlights Letter:
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NACC is located in the Department of Epidemiology at the University of Washington in Seattle and funded by NIA/NIH cooperative grant U24 AG072122.
The ADRC program
The National Institute on Aging/NIH currently funds 36 ADRCs and 0 Exploratory Centers across the United States. The Centers work to translate research advances into improved diagnosis and care and find ways to treat and possibly prevent Alzheimer's disease and related dementias. Each has its own research focus and recruitment protocol. However, the Centers are all required to involve their entire clinic enrollment in the Uniform Data Set (UDS) study and submit these data to NACC.
The Centers are organized in "cores" (Administrative; Clinical; Data Management & Statistics; Imaging; Neuropathology; Outreach, Recruitment and Engagement; and Biomarker) and "components" (Research Education Component).
For more information on the ADRC Program, please visit the NIA website.
NACC Modernization
Help us build a one-stop-shop for all data from the Alzheimer’s Disease Research Centers (ADRC) Program
NACC , NCRAD, and NIAGADS are eager to partner with ADRD researchers and clinicians from across the Alzheimer’s Disease Research Centers (ADRC) Program and beyond to build the “Data Front Door” (DFD), a one-stop-shop for all ADRC data. Our goal is to have this platform integrate and connect all ADRC data streams to NACC IDs and serve as an effective search, visualization, and access interface for this data. NCRAD and NIAGADS data will continue to be housed within the NCRAD and NIAGADS databases but biomarker and genetic metadata for all ADRC participants will be searchable through the DFD.
Our hope is that harmonizing these data streams and connecting them to NACC IDs will enable researchers to investigate and answer new questions in Alzheimer’s disease.
Learn about NACC's work to create a Next Generation Multimodal Data Platform for Discovery and Translation in Alzheimer's Disease:
We welcome you to share your input in two ways:
- Sign-up to participate in one of our focus groups with thought leaders from across the ADRC program
- Take the survey on Data Front Door Requirements
NACC staff
Leadership
Project Management Team
Grants & Finance Team
Communications Team
Research Team
Technology Team
Founding Leadership
