The Neuropathology Data Set (NP) is collected using a standardized neuropathological evaluation and contains autopsy data for a subset of both UDS and MDS participants. The standard data set collection began in 2002. Neuropathologists were asked to retrospectively complete the forms from their internal reports for the period of 1984 – 2002 and then to proceed prospectively 2002 to present. Starting in 2005 when the UDS began, the NP data can be linked to detailed longitudinal clinical data. Please note that changes in diagnostic criteria and staining methods may limit the available data for certain analyses. To receive the NP data in the NACC Quick-Access file, submit a data request.

The Brief Data Set (BDS), initiated circa 2021, is used to capture a brief set of clinical data for the purpose of submitting a neuropathology data form. This form is required if a participant did not have any UDS visit data or MDS data at NACC prior to autopsy. BDS data will be included as part of the NACC Quick-Access file within the next year.