Data Request Process
High-Quality Neurological Research Data
Available free to researchers worldwide!
Data Request Process
The steps and resources outlined below will help you plan your project and request the necessary data from NACC.
1.
Learn about NACC data and available datasets.
2.
Review the NACC policies and guidelines for using NACC data.
3.
Search for similar projects to ensure that your work doesn't overlap with an existing project. It is the responsibility of the researcher, not NACC, to identify a unique research hypothesis and ensure there is no significant overlap with existing analyses.
4.
Request access to NACC data by answering a few brief questions about the project you have in mind. NACC will respond in three business days to acknowledge your request and ask for clarification, if needed.
5.
Accept the terms of the NACC Data Use Agreement which is designed to protect the privacy of study participants, ensure appropriate use of the data solely by the individuals identified in the data request, and ensure that NACC is acknowledged in any publications and kept informed before and during the publication submission process.
NACC Data Snapshot
Participant Data
- 54,600+ participants across 26 states
- 204,000+ visits (ranging from 1-20 visits for participants, average of 3.7 visits per participant)
- Comprehensive Demographics
Clinical Data
- Health history
- Clinical Assesments including CDR, GDS, NPI-Q, and FAS
- Clinician judgement of symptoms
- Clinical diagnosis including cognitive and etiological
Imaging & Exam Data
- Neuropsychological test battery
- Neuropathology data from autopsy: 8,400+ participants
- APOE genotype: 40,900+ participants
- Structural MRI: 12,000+ participants
- Calculated MRI: 2,800 participants
- Amyloid PET scans: 455 participants
- CSF biomarker data: 2,200+ participants
Genetic Data
Available through NACC partners