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UDSv4 Translations FAQ

Spanish UDSv4 FAQs

December 19, 2025

  • The Spanish UDSv4 IVP and Neuropsych Battery are now available on the EDC Docs site for download by all ADRCs.  

  • Sites are encouraged to provide feedback on the forms using this survey.

Q1 2026

  • The Spanish UDSv4 FVP, C2T (worksheets and instructions), and CLS will be posted on the EDC Docs site. 

  • Sites can only do in-person or video neuropsych battery using C2 until C2T is available.

We want to extend our deep appreciation and thanks to the entire UDSv4 Latino Task Force. This task force came together to develop a culturally and linguistically appropriate Spanish version of the UDSv4 battery so ADRCs can more effectively administer neuropsychological testing with participants from a wide variety of Latino backgrounds.  

The Latino Task Force includes bilingual (Spanish/English) and bicultural experts in dementia from diverse Latino backgrounds who are affiliated with their institutions’ ADRCs and have access to Latino Spanish-speaking staff and populations. The Task Force members are: 

  • Co-Chairs:  

    • Katya Rascovsky, PhD (University of Pennsylvania ADRC) 

    • María J. Marquine, PhD (Duke ADRC) 

  • Coordinator

    • Lizbeth Vera-Murillo (Duke University) 

  • Members:   

    • Paula Aduen, PhD (Mayo Clinic ADRC)  

    • Silvia Chapman, PhD (Columbia ADRC) 

    • Maria Corrada, ScM, ScD (UC Irvine ADRC)  

    • Lina D’Orazio, PhD (USC ADRC)  

    • David Gonzalez, PhD (Rush ADRC)  

    • Jorge Libre-Guerra, MD, MS (Washington University Knight ADRC) 

    • Gladys Maestre, MD, PhD (South Texas ADRC) 

    • Jaime Perales Puchalt, PhD, MPH (University of Kansas ADRC)  

    • Monica Rosselli, PhD (1Florida ADRC) 

    • Zvinka Zlatar, PhD, MS (UCSD Shiley-Marcos ADRC)  

  • No. Please do not use the pre-release forms we provided to some sites in November 2025 to collect data. We provided the pre-release forms to aid sites in transition support and training and IRB approval only.  

  • You can start Spanish collection using the full set of forms released in December 2025. 

Will we have to pause Spanish visits given timing of legacy portal shutdown March 1? 

  • Although the legacy UDS3 portal closure is scheduled for March 1, NACC will allow sites with large Spanish cohorts to submit/finalize toward the end of the transition window (i.e., between January and end of February 2026).  

  • NACC will coordinate individually with affected sites to avoid disadvantaging Spanish participants.  

Is there flexibility beyond Jan 31 for UDS3 finalization?  

  • Yes. NACC will allow sites with large Spanish cohorts to submit/finalize toward the end of February and communicate status with them frequently, as we did with English UDSv4. 

No, a certificate of translation is not required. Drs. Marquine and Rascovsky addressed this by stating: 

  • The adaptation is being conducted by recognized experts in the field. 

  • Certificates of translation are used only when professional translation services are employed. 

  • This effort represents a cultural and linguistic adaptation, not a direct translation—an important distinction that ensures scientific and contextual accuracy. 

  • No, we do not expect IRBs to require major changes, as there are no variable differences between the English and Spanish versions of UDSv4. The updates are limited to wording adjustments for localization and cultural adaptation into Spanish, so IRB impact should be minimal.  

  • Note that some neuropsychological battery items have been refined for appropriate pronunciation and language use, but the underlying variables and data structure remain unchanged. 

  • The UDSv4 variables themselves are not changing between the languages. For any form questions or responses that are substantially different between the English UDSv4 and Spanish UDSv4 versions, the UDSv4 Latino Task Force is preparing a list of changes to include in the Researcher's Data Dictionary for release in early 2026. We will let sites know when this information is available. 

  • The Latino Task Force won’t provide a list of differences between Spanish UDS3 and Spanish UDS4 as there are already resources that describe the differences between the English UDS3 and UDS4 versions.

  • No, a Spanish-language REDCap will not be available during NACC’s Year 5 (ending May 31, 2026), as NACC and the UDSv4 Latino Task Force do not currently have resources to develop it before the next renewal. 

  • Sites may instead use printed Spanish forms and enter data into the English REDCap, marking the language of administration at the top of each form. Many centers already follow this approach successfully with bilingual staff. 

  • We recommend that sites involved with affiliated studies and cross-enrollments notify their partner IRBs once they receive the forms in November as external IRBs must submit the Spanish UDSv4 packet as well. 

  • Sites should aim to keep assessments harmonized across programs.  

  • ADRC staff across all roles are encouraged to submit the feedback form as often as needed. This input is highly valued and we will incorporate it into updated forms that are released in Spring 2026. The only exception is UDSv4 variables, which will remain identical between the English and Spanish versions. 

  • The UDSv4 Latino Task Force will review all feedback and decide what to incorporate. The feedback will be added to the forms and released in Spring 2026.