Forms and documentation
The Uniform Data Set contains longitudinal data, collected since 2005 during standardized annual evaluations conducted at the NIA-funded Alzheimer’s Disease Research Centers (ADRCs) across the country. Participants in the study represent the entire Clinical Core enrollment of the ADRCs, with cognitive status ranging from demented to mild cognitive impairment to cognitively normal. A subset of UDS participants are also evaluated with one of the additional sets of diagnosis-specific data-collection forms, the FTLD Module or the LBD Module.
For clinicians planning to administer the UDS, training materials are available.
For updates on progress towards UDSv4, see the UDSv4 Updates Page.
This overview of NACC data outlines UDS study population, collection methodology, and up-to-date participant statistics.
In response to COVID-19, telehealth data collection was expanded. See a summary of form changes and training materials.
To use NACC forms in research outside of the ADRC program, please submit a Permission Request.
The UDS is available in Spanish below along with usage instructions. Contact naccmail@uw.edu for information on a Mandarin translation of the IVP.
Essential documents
Please begin with the Researchers Data Dictionary for the UDS, which is intended as the first and primary resource for those analyzing NACC clinical and demographic data. See also this overview of the data available at NACC.
| Initial Visit (IVP) | Follow-up Visit (FVP) | Tel. Initial Visit (TIP) | Tel. Follow-up (TFP) |
|---|
Individual forms
A1: Subject Demographics A2: Co-participant Demographics A3: Subject Family History A4: Subject Medications A5: Subject Health History B1: Evaluation Form — Physical B1A: Evaluation Form — Blood Pressure Addendum B4: CDR® Dementia Staging Instrument Plus NACC FTLD Behavior & Language Domains (CDR® Plus NACC FTLD) B5: Behavioral Assessment — Neuropsychiatric Inventory Questionnaire (NPI-Q¹) B6: Behavioral Assessment — Geriatric Depression Scale B7: Functional Assessment — NACC Functional Assessment Scale B8: Evaluation Form — Neurological Examination Findings B9: Clinician Judgment of Symptoms C1: Neuropsychological Battery Scores C2: Neuropsychological Battery Scores - Please contact NACC at naccmail@uw.edu if you need Form C1 and the C1 battery. Scores should only be reported on Form C1 by ADRCs that have licensing agreements with the battery's test publishers.
- Instructions for the Neuropsych Battery (C2)
- Worksheets alone
- Worksheets with stimulus pictures
- UDS3 N'psych Battery norms calculator — Updated March 10, 2017
- Means and standard deviations as of June 2020
- Test norms — UDS Version 3 (Weintraub et al., 2018)
- Expanded test norms including race — UDS version 3 (Sachs et al,. 2020)
- Discriminatory ability of UDS v3 neuropsychological tests and composite scores (Dodge et al., 2020)
- Results from the crosswalk study harmonizing scores between UDS versions.
C2T: Neuropsychological Battery Scores D1: Clinician Diagnosis D2: Clinician-assessed Medical Conditions T1: Inclusion Form Z1X: Form Checklist A1: Información Demográfica del Sujeto A2: Información Demografica del Informante A3: Historia Familiar del Sujeto A4: Medicamentos del Sujeto A5: Historia Medica del Sujeto B1: Evaluación Fisica B4: Estado Global — Índice Clínico de Demencia (CDR®): Estándar Y Suplementaria B5: Evaluación Conductal — Inventario Neuropsiquiátrico (NPI-Q¹) B6: Evaluacion Conductal — Escala de Depresion Geriatric B7: Evaluacion Conductal — Escala de Evaluación Funcional de NACC B8: Evaluación – Hallazgos de la Evaluación Neurológica B9: Juicio Clinico de los Sintomas C2: Puntajes Sumarios de la Bateria Neuropsicologica - Spanish MINT stimulus pictures
- Worksheets alone
- Worksheets with MINT stimulus pictures
- Spanish UDSv3 norms coming soon. For information, please contact Dr. Maria Marquine: maria.marquine@duke.edu.
C2T: Puntajes Sumarios de la Batería Neuropsicológica T-cog D1: Diagnóstico Clínico D2: Condiciones Médicas Evaluadas Clínicamente T1: Formulario de Inclusión Z1X: Lista de verificacion de formularios