NACCID Pilot
Testing out the New NACCID Process
The National Alzheimer’s Coordinating Center (NACC) is launching a new process for assigning NACCIDs. NACCIDs are the unique identifiers assigned by NACC for Alzheimer’s Disease Research Center (ADRC) participants. These IDs are critical for linking the Uniform Data Set (UDS) with other data within the NACC Data Platform. With the new NACCID process, ADRCs will submit a simple form to NACC in order to assign NACCIDs to participants at the time of consent.
NACCIDs should only be assigned to participants if they will participate in the UDS study at some point. Once assigned, the NACCID will accompany every data type that is submitted for that participant to NACC including UDS, Standardized Centralized Alzheimer’s disease and related dementias Neuroimaging (SCAN) initiative, Clarity in ADRD Research Through Imaging (CLARiTI), and affiliated study data.
The new process will allow for additional NACCID verification, improve flexibility by enabling participant data types to be submitted to the NACC Data Platform in any order, and streamline multimodal data integration. This new process will not affect how ADRCs assign their own site-specific IDs or NIA GUIDs. We are eager for input via your participation in the NACCID pilot outlined in this page and look forward to teaming up with the ADRCs to roll out the new NACCID process.
What are the goals of the pilot?
The goals of the NACCID Pilot are to test and receive your feedback on the usability and functionality of the following:
Using the NACCID Onboarding Checklist to get started with the new NACCID process.
Using the ADRC Portal to assign NACCIDs at the time of consent. There are three options for assigning NACCIDs within the ADRC Portal.
Using the ADRC Portal to transfer participants to your center.
Using the errors and alerts page to resolve and resubmit data as needed.
Your feedback is critical and will help inform us of next steps for refining the NACCID assignment process. You will be asked to provide input during the pilot through a set of brief feedback forms.
NOTE: The NACCID Pilot is not intended to be used with actual participants. Please only test this process using fake data.
NACCID Pilot Timeline
Roles for
| Category | Task | April | May | June |
|---|---|---|---|---|
| Pilot Nomination | ADRCs nominate primary pilot participants | ADRC | ||
| Onboarding | Attend or watch onboarding training & preboarding meeting [5/17] | Both | ||
| Pilot forms distributed | NACC | |||
| Pilot Period & Reporting | ADRCs run pilot tests | ADRC | ||
| ADRCs provide pilot feedback | ADRC | |||
| Mid-pilot meeting | Both | |||
| ADRCs provide test feedback [through 6/19]] | ADRC |
Who Will Run the Pilot at Your ADRC?
The point person will be responsible for:
- Filling out the sign-up form
- Participating in the NACCID Pilot meetings
- Completing the REDCap Feedback Form for each method of upload used (The feedback forms required of each ADRC will depend on which methods the Center plans to use.)
How will ADRCs Assign NACCIDs?
NACCID Pilot users will log into the new ADRC Portal to test out new submission site.
- Direct entry into NACC’s REDCap instance.
- CSV Batch file upload into the NACC Data Platform.
- CSV upload into the NACC Data Platform via API.
For information on how to load the NACCID Assignment and Transfer Form into your ADRC’s instance of REDCap, click here.
Resources
To facilitate participation in this pilot, participating ADRCs will be provided with the following:
- NACCID Onboarding Checklist
- NACCID Pilot Onboarding Meeting (will be available by recording as well)
- NACCID Pilot Midpoint Meeting